Building Sustainable Patient-Partners-Relationships: Perspectives on Crucial Aspects
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Giebel, C., Hassan, S., McIntyre, J. C., Corcoran, R., Barr, B., Gabbay, M., Downing, J., Comerford, T., et Alfirevic, A. (2019). Public involvement in the dissemination of the North West Coast Household Health Survey: Experiences and lessons of co-producing research together. Health expectations: an international journal of public participation in health care and health policy, 22(4), 643–649. https://doi.org/10.1111/hex.12940
Hahn, D. L., Hoffmann, A. E., Felzien, M., LeMaster, J. W., Xu, J., et Fagnan, L. J. (2017). Tokenism in patient engagement. Family practice, 34(3), 290–295. https://doi.org/10.1093/fampra/cmw097
Hamilton, C. B., Hoens, A. M., Backman, C. L., McKinnon, A. M., McQuitty, S., English, K., et Li, L. C. (2018). An empirically based conceptual framework for fostering meaningful patient engagement in research. Health expectations: an international journal of public participation in health care and health policy, 21(1), 396–406. https://doi.org/10.1111/hex.12635
ICHOM Connect. (s. d.) Patient-Centered Outcome Measures. https://connect.ichom.org/patient-centered-outcome-measures/heart-valve-disease/
Lauzon-Schnittka, J., Audette-Chapdelaine, S., Boutin, D., Wilhelmy, C., Auger, A. M., et Brodeur, M. (2022). The experience of patient partners in research: a qualitative systematic review and thematic synthesis. Research involvement and engagement, 8(1), 55. https://doi.org/10.1186/s40900-022-00388-0
Majid U. (2020). The Dimensions of Tokenism in Patient and Family Engagement: A Concept Analysis of the Literature. Journal of patient experience, 7(6), 1610–1620. https://doi.org/10.1177/2374373520925268
National Health Service England. (2017, 6 April). Involving people in their own health and care: Statutory guidance for clinical commissioning groups and NHS England (publication No. 06664). https://www.england.nhs.uk/wp-content/uploads/2017/04/ppp-involving-people-health-care-guidance.pdf
Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., et Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants: A patient-oriented research project. Health expectations: an international journal of public participation in health care and health policy, 26(4), 1584–1595. https://doi.org/10.1111/hex.13763
Richards, D. P., Poirier, S., Mohabir, V., Proulx, L., Robins, S., et Smith, J. (2023). Reflections on patient engagement by patient partners: how it can go wrong. Research involvement and engagement, 9(1), 41. https://doi.org/10.1186/s40900-023-00454-1
Tscherning, S. C., Bekker, H. L., Vedelø, T. W., Finderup, J., et Rodkjær, L. Ø. (2021). How to engage patient partners in health service research: a scoping review protocol. Research involvement and engagement, 7(1), 20. https://doi.org/10.1186/s40900-021-00268-z